A mom holding baby finger

Stages of Emotions for a New Heart Mom

You may have just heard those terrible words: “There is something wrong with your baby’s heart.” You may not have answers yet. You may feel stuck in limbo. You may be wondering if they have made a mistake. Mama, I hope they have. I have been here. I have heard those words. I have felt what you…

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Pregnancy is Riskier With Congenital Heart Defects

by Ashley Lyles, Staff Writer, MedPage Today April 29, 2019  Women with congenital heart defects (CHDs) had riskier pregnancies than other women, a study showed. The odds of pre-eclampsia and placenta previa were 50% elevated compared with women who didn’t have CHDs, while odds of arrhythmias were about 12-fold, elevated and thromboembolic event risk was doubled. Operative vaginal…

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Soon to be Heart Mom

You’ve received the news that you’ll be having a child with a critical congenital heart defect but what now? This page is growing and we hope to aid you in what to expect, how to prepare, and to raise your soon to come Heart Warrior. At this time, even with improved treatments, many people with…

Mom holding baby

Coping with a Congenital Heart Defect: The First Year

Various media outlets caught wind of our Jack winning the national Starlight Children’s Foundation’s ‘Design a Gown’ contest— where people across the country were encouraged to design a creative hospital gown for children facing challenges in the hospital. He entered the contest for his sister, Everly, who has a Congenital Heart Defect (CHD). Upon his…