Soon to be Heart Mom
You've received the news that you'll be having a child with a critical congenital heart defect but what now? This page is growing and we hope to aid you in…
Coping with a Congenital Heart Defect: The First Year
Various media outlets caught wind of our Jack winning the national Starlight Children’s Foundation’s ‘Design a Gown’ contest— where people across the country were encouraged to design a creative hospital…
Screening for critical congenital heart defect
Newborn screening for critical congenital heart defects may help identify newborns with these conditions and allow for timely care and treatment. Babies with a critical congenital heart defect usually need…
1st Remington’s Heart Rally & Ride is a Huge Success!
The Rally & Ride for Remington’s Heart was a huge success! More people attended than we could even imagine... and that is INCREDIBLE! Over 60 bikes and more than 100…
Meet Finn – TAPVR
Finn was diagnosed with TAPVR, Complete AV Canal Defect, Heterotaxy, DORV, Pulmonary Stenosis, and more. We are honored to feature Finn who has been an inspiration to so many heart…
Meet Levi – HLHS Heart Warrior
Hi, my name is Lindsey and I’m a heart Mom to our beautiful little heart warrior Levi. Our heart journey began on December 27th, 2017 when our son Levi was…
Moms Letter to Remi – Celebrating her Birthday in Heaven
by Kaleigh Craft, Staff Writer, Remington's Heart Foundation Exactly one year ago, I remember being terrified, yet so excited to finally meet you. I was so scared of what was to come.…
Remington’s 1st Birthday Toy Donation
Although Remi may no longer be with us, we still try to keep things as normal as possible and help others. We have been making plans to celebrate Remington’s first…