Wendy Wees suffered a miscarriage during her first pregnancy with husband, Jason Protiva, so they were overjoyed when they passed the nine-week mark of her
CONGENITAL HEART DEFECTS IS THE #1 BIRTH DEFECT IN THE UNITED STATES.
Our mission is to provide support both financial and emotional, for families of children diagnosed with a critical congenital heart defect. Our goal is to provide assistance to families with extra costs incurred while caring for their affected child. These costs include but are not limited to: travel expenses to and from medical facilities, food expenses while away from home, along with care and lodging expenses while receiving care.
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We fight to help Heart Warriors like Ryker!
He was born with Hypoplastic Left Heart Syndrome.
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Like many first-time moms, Stephanie Tawata was anxiously navigating the ups and downs of a newborn. She was grateful that her son, Jase, slept a
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About Remington's Heart
Remington Jade Craft was born on February 1st, 2017 with a rare and incurable critical congenital heart defect called HLHS. Her parents were given three difficult options that no parent should ever have to choose from. Ultimately, they chose to give her a chance at life through open-heart surgeries. Remi was a rockstar, and she beat all of the odds after her first open-heart surgery. Right before she turned 2 months old, she passed away due to complications caused by her complex heart. The Remington’s Heart Foundation was formed in honor of Remington. We are dedicated to helping families of babies and children with congenital heart defects because we have been in their shoes, and we know their struggle.
Why We Help
With the dedication of our board, volunteers, and donors, the Remington’s Heart Foundation helps to provide relief while their child is in the hospital receiving the care they need.
A Congenital Heart Defect (or Congenital Heart Disease) is a life-long condition in which an abnormality of the heart is present at birth. If the child survives, they can be physically limited throughout their life and may experience premature death due to heart failure. CHD kills twice as many children as all forms of pediatric cancer combined, but only receive 1/5th of the funding.