Boy with ‘half a heart’ gets lifesaving transplant
October 23, 2020
Wendy Wees suffered a miscarriage during her first pregnancy with husband, Jason Protiva, so they were overjoyed when they passed the nine-week mark of her
CONGENITAL HEART DEFECTS IS THE #1 BIRTH DEFECT IN THE UNITED STATES.
Our mission is to provide support both financial and emotional, for families of children diagnosed with a critical congenital heart defect. Our goal is to provide assistance to families with extra costs incurred while caring for their affected child. These costs include but are not limited to: travel expenses to and from medical facilities, food expenses while away from home, along with care and lodging expenses while receiving care.
SPREAD AWARENESS - KNOW CHD FACTS
1 in 100 newborns are born with CHD
Most causes of CHDs are unknown. Only 15-20% of all CHDs are related to known genetic conditions
There is no cure. CHD is a lifelong disease requiring ongoing specialized care
Fewer than 10% of adults with CHD are receiving recommended care
Over 85% of babies born with a CHD now live to at least age 18
Costs for hospitalizations related to congenital heart disease were more than $6 billion in 2013
CHDs can have lifelong neurodevelopmental and neurocognitive effects
There is no cure. CHD is a lifelong disease requiring ongoing specialized care
CHDs are 50 times more common than childhood cancer
25% of children born with CHD need heart surgery or other interventions to survive
Latest CHD News
A clean bill of health at birth, his heart failed at 2 months
September 9, 2020
Like many first-time moms, Stephanie Tawata was anxiously navigating the ups and downs of a newborn. She was grateful that her son, Jase, slept a
Stages of Emotions for a New Heart Mom
August 27, 2020
You may have just heard those terrible words: “There is something wrong with your baby’s heart.” You may not have answers yet. You may feel stuck in
We have the best donors. You care about our cause and provide comfort and support to local families.
Did you know several heart families give back? If you are a family member of a Heart Warrior or Heart Angel who wants to join our cause, contact us and let’s talk!
We are currently filling up our new care packages for new CHD Warriors. Each care package will include items for parents and their Heart Warrior.
100% of donations through Facebook go toward our mission. There are no fees, which makes this an amazing platform for fundraisers!
About Remington's Heart
Our History
Remington Jade Craft was born on February 1st, 2017 with a rare and incurable critical congenital heart defect called HLHS. Her parents were given three difficult options that no parent should ever have to choose from. Ultimately, they chose to give her a chance at life through open-heart surgeries. Remi was a rockstar, and she beat all of the odds after her first open-heart surgery. Right before she turned 2 months old, she passed away due to complications caused by her complex heart. The Remington’s Heart Foundation was formed in honor of Remington. We are dedicated to helping families of babies and children with congenital heart defects because we have been in their shoes, and we know their struggle.
Why We Help
We help simply because it’s the right thing to do. Heart families have enough to worry about while their child is in the hospital. We want them to be able to solely focus on their warrior without the added worry of bills accumulating. Remington’s Heart Foundation is dedicated to helping alleviate some of their stress through financial and emotional support.
With the dedication of our board, volunteers, and donors, the Remington’s Heart Foundation helps to provide relief while their child is in the hospital receiving the care they need.
A Congenital Heart Defect (or Congenital Heart Disease) is a life-long condition in which an abnormality of the heart is present at birth. If the child survives, they can be physically limited throughout their life and may experience premature death due to heart failure. CHD kills twice as many children as all forms of pediatric cancer combined, but only receive 1/5th of the funding.
