Little Oklahoma baseball player doesn’t let congenital heart defect slow down his game of life
May 28, 2021
by: Joleen Chaney Posted: May 25, 2021 / 05:11 PM CDT / Updated: May 25, 2021 / 05:41 PM CDT OKLAHOMA CITY (KFOR) – “I
We are dedicated to helping CHD families
Join the fight, raise awareness, support CHD families!
CONGENITAL HEART DEFECTS IS THE #1 BIRTH DEFECT IN THE UNITED STATES.
New Heart Mom?
If your child has recently been diagnosed with a CHD, you can request one of our newborn care packages, apply for a grant, and search for other resources.
What is CHD?
Congenital heart defects (CHDs) are the most common type of birth defect.
CHDs are present at birth and can affect the structure of a baby’s heart and the way it works. They can affect how blood flows through the heart and out to the rest of the body.
Down Syndrome & CHD
A pediatric cardiologist explains why these two conditions often occur together.
How you can help...
Sometimes donating money isn’t easy, we get it! But you can donate your time and effort. We have a few simple ideas to help you fundraise. Make us your charity and let Amazon Smile do the rest, or start a Facebook Fundraiser. We also have a Charity List on Amazon. If you are still stumped, it’s ok, we have more ideas, just click the link below. Thank you for supporting Remington’s Heart!
Little Hearts, Big Hats
Many of you have heard that the American Heart Association ended its long-standing program called Little Hats, Big Hearts, due to the possibility of SIDS.
Remi used one of the little red hats that someone knitted out of love and generosity. When we heard the AHA program ended, we wanted to give those compassionate yarn crafters a new program to be involved in.
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Wendy Wees suffered a miscarriage during her first pregnancy with husband, Jason Protiva, so they were overjoyed when they passed
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Like many first-time moms, Stephanie Tawata was anxiously navigating the ups and downs of a newborn. She was grateful that
Giving Back
On August 16th, 2020 the Giving Committee was formed to ensure we do our absolute best at giving support in various ways to local heart families. Our board believes this committee is vital and must be led by an exceptional, hard-working individual dedicated to our cause and be knowledgeable in congenital heart defects.
As a local heart mom, Haley Sparks is more than qualified to represent Remington’s Heart Foundation and knows firsthand the struggles and joys associated with CHD.
Our Mission
Our mission is to provide financial and emotional support to families of children diagnosed with a critical congenital heart defect. We provide assistance to these families when they need it the most. This allows them to solely focus on their warrior's care without the added stress of bills piling up. These costs include, but are not limited to: travel expenses to and from medical facilities, food expenses while away from home, along with lodging expenses while receiving care.
Because of her...
Our journey in CHD life was brief...
Remington was born on February 1st, 2017 with a rare and incurable critical congenital heart defect called HLHS.
Her parents were given three difficult options that no parent should ever have to choose from. Ultimately, they chose to give her a chance at life through open-heart surgeries.
Remi was a rockstar, and she beat all of the odds after her first open-heart surgery. Right before she turned 2 months old, she passed away due to complications caused by her complex heart.
The Remington’s Heart Foundation was formed in honor of Remington. We are dedicated to helping families of babies and children with congenital heart defects because we have been in their shoes, and we know their struggle.
About Remington's Heart Foundation
Why We Help
We help simply because it’s the right thing to do. Heart families have enough to worry about while their child is in the hospital. We want them to be able to solely focus on their warrior without the added worry of bills accumulating. Remington’s Heart Foundation is dedicated to helping alleviate some of their stress through financial and emotional support.
Remington’s EKG
February is...
Heart Month Awareness
Last year was a blast! We met so many heart parents and heard so many inspirational stories, and some heartbreaking ones. This year we would love to honor your child through the month of February and spread CHD awareness.
Heart Month Awareness
Last year was a blast! We met so many heart parents and heard so many inspirational stories, and some heartbreaking ones. This year we would love to honor your child through the month of February and spread CHD awareness.
Most causes of CHDs are unknown. Only 15-20% of all CHDs are related to known genetic conditions
1 in 100 newborns are born with CHD
There is no cure. CHD is a lifelong disease requiring ongoing specialized care
Fewer than 10% of adults with CHD are receiving recommended care
Over 85% of babies born with a CHD now live to at least age 18
Costs for hospitalizations related to congenital heart disease were more than $6 billion in 2013
CHDs can have lifelong neurodevelopmental and neurocognitive effects
There is no cure. CHD is a lifelong disease requiring ongoing specialized care
CHDs are 50 times more common than childhood cancer
25% of children born with CHD need heart surgery or other interventions to survive
We have the best donors. You care about our cause and provide comfort and support to local families.
Did you know several heart families give back? If you are a family member of a Heart Warrior or Heart Angel who wants to join our cause, contact us and let’s talk!
We are currently filling up our new care packages for new CHD Warriors. Each care package will include items for parents and their Heart Warrior.
100% of donations through Facebook go toward our mission. There are no fees, which makes this an amazing platform for fundraisers!
SPREAD AWARENESS - KNOW CHD FACTS