Boy with ‘half a heart’ gets lifesaving transplant
Wendy Wees suffered a miscarriage during her first pregnancy with husband, Jason Protiva, so they were overjoyed when they passed the nine-week mark of her
If your child has recently been diagnosed with a CHD, you can request one of our newborn care packages, apply for a grant, and search for other resources.
Congenital heart defects (CHDs) are the most common type of birth defect.
CHDs are present at birth and can affect the structure of a baby’s heart and the way it works. They can affect how blood flows through the heart and out to the rest of the body.
Sometimes donating money isn’t easy, we get it! But you can donate your time and effort. We have a few simple ideas to help you fundraise. Make us your charity and let Amazon Smile do the rest, or start a Facebook Fundraiser. We also have a Charity List on Amazon. If you are still stumped, it’s ok, we have more ideas, just click the link below. Thank you for supporting Remington’s Heart!
Many of you have heard that the American Heart Association ended its long-standing program called Little Hats, Big Hearts, due to the possibility of SIDS.
Remi used one of the little red hats that someone knitted out of love and generosity. When we heard the AHA program ended, we wanted to give those compassionate yarn crafters a new program to be involved in.
Wendy Wees suffered a miscarriage during her first pregnancy with husband, Jason Protiva, so they were overjoyed when they passed the nine-week mark of her
Like many first-time moms, Stephanie Tawata was anxiously navigating the ups and downs of a newborn. She was grateful that her son, Jase, slept a
You may have just heard those terrible words: “There is something wrong with your baby’s heart.” You may not have answers yet. You may feel stuck in
Nash was born with critical congenital heart defect, his parents express their gratitude toward Remington’s Heart Foundation. Remington’s father and Vice President explains the need for continued support from individuals.
Remington was born on February 1st, 2017 with a rare and incurable critical congenital heart defect called HLHS. Her parents were given three difficult options that no parent should ever have to choose from. Ultimately, they chose to give her a chance at life through open-heart surgeries. Remi was a rockstar, and she beat all of the odds after her first open-heart surgery. Right before she turned 2 months old, she passed away due to complications caused by her complex heart. The Remington’s Heart Foundation was formed in honor of Remington. We are dedicated to helping families of babies and children with congenital heart defects because we have been in their shoes, and we know their struggle.
Most causes of CHDs are unknown. Only 15-20% of all CHDs are related to known genetic conditions
1 in 100 newborns are born with CHD
There is no cure. CHD is a lifelong disease requiring ongoing specialized care
Fewer than 10% of adults with CHD are receiving recommended care
Over 85% of babies born with a CHD now live to at least age 18
Costs for hospitalizations related to congenital heart disease were more than $6 billion in 2013
CHDs can have lifelong neurodevelopmental and neurocognitive effects
There is no cure. CHD is a lifelong disease requiring ongoing specialized care
CHDs are 50 times more common than childhood cancer
25% of children born with CHD need heart surgery or other interventions to survive
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